Family and Friends -
We met today with the NIH team. We were very impressed! Dr Fine has been studying this one disease for 23 years. The team spent over 2 1/2 hours talking with us, examining Rusty, and providing information about the treatment plan they recommend.
No new news, but a comforting feeling that Roger is being well cared for during this time. (Thanks, friends, for briefing me so well!)
NIH will now contact WRNMMC and pass the treatment protocol to Oncology and Radiation. They, in turn, will share their notes with NIH. Roger was enrolled in the history trial at NIH, so we'll have regular visits to "watch" this cancer.
We were also comforted that this NIH team doesn't believe in personal expiration dates.